Patient Registry for Hand Transplantation

9 Sep 2024

India has launched its first registry for patients needing hand transplants.

Registry of hand transplants

  • The registry, under the National Organ and Tissue Transplant Organisation (NOTTO), aims to ensure transparent and priority-based allocation of donated hands.
  • Patients requiring hand transplants can register with the National Organ and Tissue Transplant Organisation (NOTTO) under the “bone” category. 

About Hand Transplantation

Hand Transplantation

  • Hand transplantation is a surgery where a new hand or arm from a donor is attached to someone who has lost their own hand or arm.
    • Hands fall under the category of ‘composite tissue’.
  • Registered Hospitals: There are currently nine hospitals registered for performing hand transplants in the country.
  • Conditions for Hand Donation
    • Brain Death: Hands can be donated after the donor has been declared brain dead.

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Composite tissue

  • These are types of tissue which are made of more than one type of cell or tissues such as skin, muscle, nerves, tendons, bone, and blood. 
  • These tissues work together to perform a specific function. 
    • Cardiac Death: In some cases, hands can also be donated after cardiac death. 
      • However, this requires that the donation takes place within 30 minutes of the heart stopping.

Benefits and Challenges of Hand Transplantation in India

Benefits

  • Improved Quality of Life: Hand transplantation can significantly enhance the quality of life for individuals who have lost one or both hands. 
    • It can restore functionality, independence, and self-esteem.
  • Increased Access: The establishment of a national registry will improve access to hand transplants by facilitating the efficient allocation of donated organs.

Challenges

  • Lack of Donated Hands: The primary challenge is the shortage of donated hands.
  • Logistical Difficulties: Transporting donated hands across the country can be logistically challenging.
  • Surgical Complexity: Hand transplantation is a complex procedure requiring specialized expertise.
  • Financial Costs: The procedure can be expensive.
  • Other Risks: infection, nerve damage, and blood vessel problems. 

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Regulatory Framework for Organ Transplantation in India

  • Transplantation of Human Organs and Tissues Act (THOTA), 1994

  • THOTA 1994 Provides the legal framework for organ transplantation in India.
    • Organ Donation: Organs can be donated by deceased individuals or living donors.
    • Altruistic Donations: Donations from distant relatives, in-laws, or long-time friends are allowed but require additional checks.
    • Unrelated Donors: Must provide documents to prove a long-term connection.
    • Organ Trafficking: Offering or paying for organs is illegal and punishable by up to 10 years in jail and a fine.
    • Brain Death: Brain stem death is legally recognized as death.
    • Transplantation Rules: The Transplantation of Human Organs and Tissues Rules 2014 promote organ donation from deceased donors.
  • National Organ and Tissue Transplant Organisation (NOTTO)

    • NOTTO provides a national system for organ procurement and distribution.
      • National Organ Transplantation Guidelines

        • Removed Age Cap: There is no longer an upper age limit for organ recipients.
        • No Domicile Requirement: Patients can register for organs in any state.
        • No Registration Fees: States are instructed to discontinue registration fees.
      • Organ Transport Policy

        • Uniform Policy: A uniform policy has been finalized to speed up organ transport between hospitals.
        • Involvement of Ministries: The policy was created by Niti Aayog with input from various ministries.

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