Patients of Sjögren’s Disease in India are struggling with diagnosis and challenges of managing symptoms.

About Sjögren’s Disease

• Sjögren’s disease is a chronic autoimmune disorder where the immune system mistakenly attacks the body’s moisture-producing glands.
• Commonly causes dryness in the eyes and mouth but can also affect joints, skin, lungs, kidneys, and the nervous system.
• Primarily affects women (10 times more likely than men) and usually manifests in the 30s or 40s, though it can occur at any age.
• Cause of Disease: Researchers do not know what causes the immune system to turn on the body, but they believe that both genetic and environmental factors are involved.
  • Studies have linked Sjögren’s disease to variants (changes) in several genes, many of which are involved in immunity.

Challenges in Diagnosis

• Often remains undiagnosed for years due to its complex and overlapping symptoms.
• Low awareness among healthcare professionals contributing to diagnostic delays.

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Prevalence and Risk Factors

• Global estimates suggest it affects 1 in 1,000 people, though Indian-specific data is limited.
• Strongly linked to genetic and environmental factors; women and older individuals are at higher risk.

Patient Advocacy and Support

• Sjögren’s India: To raise awareness and provide resources for patients.
• PatientsEngage: Empowers patients by amplifying their voices and fostering partnerships between patients and doctors.